After a nice 3 month break of weekly hospital visits, tomorrow we go back for a follow up visit with Dr. Zuker. At this visit, he will have a look at how Keziah's incisions are healing, as well as make a plan for around her eye.
Keziah's incisions have healed up, with an open spot here and there where a stitch is making its way through. But other than that, they are all sealed up. Her head must have really done some growing in the last 3 months as the scar lines have widened considerably.
Until we do scar revision (most likely once she is a teenager, unless Dr. Zuker comes up with a plan for this tomorrow), we are thankful for her thick hair which, when styled certain ways, covers the gaps pretty nicely:
The hair that was shaved off is growing, about 2.5 inches long now. And because of the top of her hair now being on the side of her head due to the stretched skin, her hair length is quite uneven. That means her next appointment will be for a good hair cut (are you reading this, Lynne? :o)
(you can see the locks on the left that are longer than the rest of her hair length)
Keziah knows where we are going and is fine with it - especially when the answer to her question of "will he do anything to me?" was answered in the way she was hoping - Nope. :o)
(no, that isn't an expander in the middle of her forehead but a bug bite!! At the rate it's growing, it looks like we may have some extra skin :o)
We will keep you updated as to how tomorrow's appointment goes and what the next steps are. Thanks for reading!!
I did wonder about that bug bite! I love the way you write. You normalize something that is anything but! God has been good to Keziah and you! I am glad you are still going to post pictures. I love her little face! Love, Aunt C.
ReplyDeleteThank you for documenting Keziah's journey. As a mother of a 22 month old with CMN and about to embark on this journey ourselves, your blog came at the right time. Best wishes to all of you.
ReplyDelete